Finally took the time to look at my Ultrasound report...
Conclusion:
1. Adnexal abnormalities consistent with extensive endometriosis.
2. Uterine findings consistent with adenomyosis.
http://www.mayoclinic.com/health/Adenomyosis/DS00636/DSECTION=symptoms
Ha. That explains a lot! (Like why I can hardly stand to wear pants that touch my lower abdomen these days, even though I've lost weight.) Adenomyosis: A severe type of Endometriosis that affects the Uterus.
Well. The crazy thing is, as much discomfort as I've been in, and changes I've noticed, I didn't really pay attention. I probably wouldn't have bothered to mention it or ask for the ultrasound if I wasn't actually trying to prove that I was sick. I'm so used to feeling awful, I hardly notice it anymore when new things come up or get worse. I just do the best I can to cope with it and enjoy the time when I don't have to.
Will have to do more research later, tired now. But so grateful I don't want biological kids, because if I did, I think I'd be really stressed/upset right now. Reading the report from my surgery, it actually says my uterus was okay back then. But now, from the little reading I've done, doesn't sound like it!
Showing posts with label Endometriosis. Show all posts
Showing posts with label Endometriosis. Show all posts
Tuesday, October 11, 2011
Endometriosis
Was having some awful, sharp nerve pain down the front of my outer thigh, and endometriosis pain too, so I decided to look up Endo & Nerve pain, and found this interesting, enlightening, if a bit icky article about it.
http://healthewoman.org/2009/06/06/new-understanding-causes-of-endometriosis-offers-hope-for-new-treatment/
Yup. That's what it's from. I probably have some on my pelvic nerves, yay me! lol.
I went to the doctor for my results yesterday, and found out it's back with a vengeance. So who knows, maybe all this time what I thought was IC was really Endo? No, I definitely have IC, but maybe it's being aggravated by the Endo, who knows, maybe it's on my bladder at this point. But I think that may be the cause of all my stomach discomfort lately. Back when I had surgery I'd gotten where I couldn't eat without feeling like there wasn't enough room in there for my organs AND food, and I felt nauseous all the time, ugh. So maybe another surgery in my near future...I am back on my natural endometriosis medicines: Indole 3 Carbiole and Nattokinase...I guess I NEVER should have started eating soy again, not even for a little while, sigh. I miss my soy meat sometimes...Ah, well. Anyone else out there have Endometriosis too? Jeezus, I feel like I'm falling apart inside. How many more of my body parts/systems/organs can malfunction before they believe I'm sick? Well, off to see if the new Capsaicin cream I bought will help with that irritating pain shooting down my leg...
http://healthewoman.org/2009/06/06/new-understanding-causes-of-endometriosis-offers-hope-for-new-treatment/
Yup. That's what it's from. I probably have some on my pelvic nerves, yay me! lol.
I went to the doctor for my results yesterday, and found out it's back with a vengeance. So who knows, maybe all this time what I thought was IC was really Endo? No, I definitely have IC, but maybe it's being aggravated by the Endo, who knows, maybe it's on my bladder at this point. But I think that may be the cause of all my stomach discomfort lately. Back when I had surgery I'd gotten where I couldn't eat without feeling like there wasn't enough room in there for my organs AND food, and I felt nauseous all the time, ugh. So maybe another surgery in my near future...I am back on my natural endometriosis medicines: Indole 3 Carbiole and Nattokinase...I guess I NEVER should have started eating soy again, not even for a little while, sigh. I miss my soy meat sometimes...Ah, well. Anyone else out there have Endometriosis too? Jeezus, I feel like I'm falling apart inside. How many more of my body parts/systems/organs can malfunction before they believe I'm sick? Well, off to see if the new Capsaicin cream I bought will help with that irritating pain shooting down my leg...
Tuesday, October 4, 2011
Made it! More appointments & tests, ugh.
Yesterday was tough. Back again to lying in bed, flat mostly (sitting, in bed or recliner even, still led to problems) but I made it. Had a hard time sleeping because I spent a couple of hours upright, and my heart wouldn't calm down/chest wouldn't relax, but finally got to sleep.
Had an ultrasound scheduled for today (to check and see if my Endometriosis was back or not so I could figure out what's hurting, my bladder or that) almost cancelled it yesterday, because I was scared to drive. (Actually was offered an appointment at a doctor I needed to see, but it's an hour a way, and there were just too many obstacles, including it being at 10am...yesterday I woke up groggy as heck after 11am, so attempting to drive myself that far, that early just seemed like setting myself up to get stressed and fail.) It was only 15-20 minutes away though, so I told myself it'd be okay...plus I'd already cancelled yet ANOTHER appointment for something else, so...
Still, spent the morning stressed and anxious. I was hungry, but literally afraid to eat; yesterday a glass of protein powder w/water seemed to set the POTS off! I had to eat something, so I had at least that. Finally showered and went to my appointment, stopping first to get more bubble gum electrolyte replacement! Haha. Yummy stuff.
So anyways, I got there okay, found great parking (woo!) only thing that sucked was they wanted me to have my bladder full, then they made me wait, not a good thing if you have IC. I finally told them I HAD to go to the bathroom and they came out for my appointment. Fortunately, it wasn't too bad, best of all, I got to empty my bladder! Wooo!
No, but the actual test, I'm not too sure about that...I got the feeling there were some things of interest to the technician, and she asked me how long I'd been having pain, and said it was good I got it checked. I know they can't give diagnoses though, so I didn't even bother asking. (She had a heavily accented English that made it hard enough to understand what she was saying half the time anyhow, and our conversation was difficult enough, lol.) So she told me to check with my doctor tomorrow afternoon for the results. Oh jeez. There's so much wrong with me, I can't keep up. (An alternative healer told me to get my reproductive organs checked, and I made appointments, but one gets tired, of so many appointments, and maybe I was feeling a bit self-destructive.) Well, I guess I'll find out tomorrow. Maybe it's just new Endometriosis cysts or adhesions or whatever. Fun times. Well, at least this time, if I need surgery I won't have to go back to work one week later! Nah, don't think I'm that bad yet. Last time I was really miserable, I'd never had surgery in my life and I didn't care, I just wanted it fixed, ASAP. Oh well. Tomorrow: blood tests, yay. (Not! lol!)
Had an ultrasound scheduled for today (to check and see if my Endometriosis was back or not so I could figure out what's hurting, my bladder or that) almost cancelled it yesterday, because I was scared to drive. (Actually was offered an appointment at a doctor I needed to see, but it's an hour a way, and there were just too many obstacles, including it being at 10am...yesterday I woke up groggy as heck after 11am, so attempting to drive myself that far, that early just seemed like setting myself up to get stressed and fail.) It was only 15-20 minutes away though, so I told myself it'd be okay...plus I'd already cancelled yet ANOTHER appointment for something else, so...
Still, spent the morning stressed and anxious. I was hungry, but literally afraid to eat; yesterday a glass of protein powder w/water seemed to set the POTS off! I had to eat something, so I had at least that. Finally showered and went to my appointment, stopping first to get more bubble gum electrolyte replacement! Haha. Yummy stuff.
So anyways, I got there okay, found great parking (woo!) only thing that sucked was they wanted me to have my bladder full, then they made me wait, not a good thing if you have IC. I finally told them I HAD to go to the bathroom and they came out for my appointment. Fortunately, it wasn't too bad, best of all, I got to empty my bladder! Wooo!
No, but the actual test, I'm not too sure about that...I got the feeling there were some things of interest to the technician, and she asked me how long I'd been having pain, and said it was good I got it checked. I know they can't give diagnoses though, so I didn't even bother asking. (She had a heavily accented English that made it hard enough to understand what she was saying half the time anyhow, and our conversation was difficult enough, lol.) So she told me to check with my doctor tomorrow afternoon for the results. Oh jeez. There's so much wrong with me, I can't keep up. (An alternative healer told me to get my reproductive organs checked, and I made appointments, but one gets tired, of so many appointments, and maybe I was feeling a bit self-destructive.) Well, I guess I'll find out tomorrow. Maybe it's just new Endometriosis cysts or adhesions or whatever. Fun times. Well, at least this time, if I need surgery I won't have to go back to work one week later! Nah, don't think I'm that bad yet. Last time I was really miserable, I'd never had surgery in my life and I didn't care, I just wanted it fixed, ASAP. Oh well. Tomorrow: blood tests, yay. (Not! lol!)
Wednesday, April 21, 2010
Origin of Chronic Pelvic Pain in Women Can Be Elusive - US News and World Report
Thought I'd post this since I had to deal with a flare of this over the weekend...
Origin of Chronic Pelvic Pain in Women Can Be Elusive - US News and World Report
Posted using ShareThis
Origin of Chronic Pelvic Pain in Women Can Be Elusive - US News and World Report
Posted using ShareThis
Thursday, January 15, 2009
Ixnay on the Endometriosisnay
Got back test results from my visit to the doctor the other day. Turns out, I have a raging UTI. THAT'S what all that pain was about. Yay!
I thought it was odd that the Neurontin, which worked so amazingly last month, had no effect this month.
I also have no cavities. Contrary to my brother's girlfriend's dire prediction that I had a cavity that needed a root canal, the sensitivity is due to some dentin wearing away, and if I don't stop it, it will be a cavity. I've already switched to a toothpaste for sensitive teeth with fluoride though, so that should help, and I'm going to be more diligent about keeping my mouth moist. It dries up from some of the meds,common thing w/FM, used to constantly suck on Halls Breezers, but then discovered there's sugar in there...switched Xylitol mints (have TMJ so can't chew gum) but kept running out, so I bought myself a ton of them...
Had other tests come back not so conclusive, meaning further exams, but I won't get into that unless I need to. The whole cross that bridge when/if you come to it deal. I had a good day darnit, and I'm going to keep it that way.
I'm so tired, but it feels good. It's "normal people tired". Like, I had a full day and got a ton done and I'm drowsy and ready for bed tired. How often does THAT happen?
(In case you're new, not often. Usually it's more like, so exhausted I can hardly breathe but I can't relax much less sleep for the life of me. So this is a sweet deal.)
Off I go...
I thought it was odd that the Neurontin, which worked so amazingly last month, had no effect this month.
I also have no cavities. Contrary to my brother's girlfriend's dire prediction that I had a cavity that needed a root canal, the sensitivity is due to some dentin wearing away, and if I don't stop it, it will be a cavity. I've already switched to a toothpaste for sensitive teeth with fluoride though, so that should help, and I'm going to be more diligent about keeping my mouth moist. It dries up from some of the meds,common thing w/FM, used to constantly suck on Halls Breezers, but then discovered there's sugar in there...switched Xylitol mints (have TMJ so can't chew gum) but kept running out, so I bought myself a ton of them...
Had other tests come back not so conclusive, meaning further exams, but I won't get into that unless I need to. The whole cross that bridge when/if you come to it deal. I had a good day darnit, and I'm going to keep it that way.
I'm so tired, but it feels good. It's "normal people tired". Like, I had a full day and got a ton done and I'm drowsy and ready for bed tired. How often does THAT happen?
(In case you're new, not often. Usually it's more like, so exhausted I can hardly breathe but I can't relax much less sleep for the life of me. So this is a sweet deal.)
Off I go...
Endometriosis makes a comeback...
Ahh. So about two posts ago, I was wondering about what it would be like to be in really bad pain that didn't go away. I got the best glimpse of that I've had in awhile today.
I'd gotten my Neurontin filled, because I remembered how bad and unrelenting the cramping was last month, and it having occurred to me that maybe it was the pain amplification of FM making it hurt so bad, and my blood pressure being above normal (high) for about the first time I know of from the pain(usually too LOW) I decided to try some Neurontin. (My other painkillers were not doing the trick, and I figured if my blood pressure was that high, I wasn't being a baby, it really WAS that bad.)
And it worked, like magic. After constant dull nagging pain for 24 hours, it was like something went still, and I realized I was relaxing because I had no more pain!
So today I had to drive an hour to go to court over a ridiculous issue with a ticket.
Moderate pain all the way there. But once I got there...The Neurontin didn't work this time. I was contemplating how bad it was going to get and if it did get worse, which hospital would take me, since I have ER bills at about every hospital in that town. But I'd been waiting 4 months for that court date,driven all the way out there in pain, and I didn't know what would happen if I didn't appear...So I took one of every painkiller I had (which I've never done before, but desperate times...) and finally it let up, right about the time I was thinking I couldn't take any more.
Guess it's time to get back on the Nattokinase & Indole-3-carbinole...whether caused by a virus, or just another weird consequence of FM/CFS (I read that as high as 50% of women with these illnesses have Endometriosis as well) it's back, it hurts, and I have to stop it. My first surgery for it sucked, I don't want to do that again, or deal with the symptoms that made me have to get it. (Nausea, hot flashes, insanely bloated stomach, pain so bad I had to take Vicodin 24/7...I would actually wake up at 5-6am from the pain because the meds had worn off!I never get up that early! Go to bed,maybe but no wake UP!) Or these hellish periods. I have enough bad days.
On the up side, I was feeling a little loaded by the time I had to get to court. That thought does give me a little perverse joy (though it was pretty justifiable I think) especially after the judge being a jerk. Not that I condone that for myself or anyone, I hardly ever take heavy duty meds like that, or go out in public on them, but I had to be there...By the time I was called up, I was feeling okay. Up until the part where he ordered me to pay $583 bail (on a fix-it ticket I sent in on time that THEY lost) and come back for a trial in JUNE. (I thought he said January though.) Then I burst into tears. I'm just so tired of being made to jump through hoops by one branch of government or another...
Well, here's hoping the pain stays at bay long enough for me to get some sleep, so tired...and wishing I had a lawyer!Then I wouldn't even have to go probably. Screw judges.
I'd gotten my Neurontin filled, because I remembered how bad and unrelenting the cramping was last month, and it having occurred to me that maybe it was the pain amplification of FM making it hurt so bad, and my blood pressure being above normal (high) for about the first time I know of from the pain(usually too LOW) I decided to try some Neurontin. (My other painkillers were not doing the trick, and I figured if my blood pressure was that high, I wasn't being a baby, it really WAS that bad.)
And it worked, like magic. After constant dull nagging pain for 24 hours, it was like something went still, and I realized I was relaxing because I had no more pain!
So today I had to drive an hour to go to court over a ridiculous issue with a ticket.
Moderate pain all the way there. But once I got there...The Neurontin didn't work this time. I was contemplating how bad it was going to get and if it did get worse, which hospital would take me, since I have ER bills at about every hospital in that town. But I'd been waiting 4 months for that court date,driven all the way out there in pain, and I didn't know what would happen if I didn't appear...So I took one of every painkiller I had (which I've never done before, but desperate times...) and finally it let up, right about the time I was thinking I couldn't take any more.
Guess it's time to get back on the Nattokinase & Indole-3-carbinole...whether caused by a virus, or just another weird consequence of FM/CFS (I read that as high as 50% of women with these illnesses have Endometriosis as well) it's back, it hurts, and I have to stop it. My first surgery for it sucked, I don't want to do that again, or deal with the symptoms that made me have to get it. (Nausea, hot flashes, insanely bloated stomach, pain so bad I had to take Vicodin 24/7...I would actually wake up at 5-6am from the pain because the meds had worn off!I never get up that early! Go to bed,maybe but no wake UP!) Or these hellish periods. I have enough bad days.
On the up side, I was feeling a little loaded by the time I had to get to court. That thought does give me a little perverse joy (though it was pretty justifiable I think) especially after the judge being a jerk. Not that I condone that for myself or anyone, I hardly ever take heavy duty meds like that, or go out in public on them, but I had to be there...By the time I was called up, I was feeling okay. Up until the part where he ordered me to pay $583 bail (on a fix-it ticket I sent in on time that THEY lost) and come back for a trial in JUNE. (I thought he said January though.) Then I burst into tears. I'm just so tired of being made to jump through hoops by one branch of government or another...
Well, here's hoping the pain stays at bay long enough for me to get some sleep, so tired...and wishing I had a lawyer!Then I wouldn't even have to go probably. Screw judges.
Sunday, January 4, 2009
Endometriosis, FM, CFS, & Other Autoimmune Illnesses
Been meaning to post it for weeks, the tab's been open in my browser so long I can't take it anymore, lol, so I hope you don't feel bombarded:
US researchers find endometriosis associated with wide range of diseases
I thought I had Endometriosis. At this point, I'm not sure because my current doctor says Enteroviruses attack the Ovaries & Testes as well, pulled up the report from the surgery I had to have some of it removed and read it to me, and it actually seemed like it they weren't positive what it was.
On the other hand, no one seems to be quite sure how Endometriosis happens or what causes it...so it seems to me it's possible it COULD be Endometriosis, and it may just turn out that Endometriosis is actually caused by an infection...
I do know for sure that it does seem to respond to hormones, becoming way better when I was taking natural progesterone, and way worse when I was taking DHEA...
US researchers find endometriosis associated with wide range of diseases
I thought I had Endometriosis. At this point, I'm not sure because my current doctor says Enteroviruses attack the Ovaries & Testes as well, pulled up the report from the surgery I had to have some of it removed and read it to me, and it actually seemed like it they weren't positive what it was.
On the other hand, no one seems to be quite sure how Endometriosis happens or what causes it...so it seems to me it's possible it COULD be Endometriosis, and it may just turn out that Endometriosis is actually caused by an infection...
I do know for sure that it does seem to respond to hormones, becoming way better when I was taking natural progesterone, and way worse when I was taking DHEA...
Sunday, December 21, 2008
Getting Better
Well, Things are improving. My heart rhythm has normalized. Only two short episodes yesterday, and one today.
I had an unexpected little windfall, and got to go do a little Christmas shopping for those who are nearest and dearest. That made my weekend. It probably sounds a bit trite, but I really don't even mind that much if I don't get anything, it's the giving I love.
It seems I'm also going to get to do the Christmas Eve thing after all. Should be nice, I miss those peeps. Though I do have a bit of anxiety over the whole inevitable what have you been up to routine. Hmm. Well, nothing much...just being sick, losing my apartment cuz I can't work enough to make a living, getting sicker, having to move to another county with my Dad in a Senior Community, away from my newly constructed life, and then getting even sicker...Yeah, that one's definitely TMI.
The other strategy is to go with as much vaguness as possible, and/or whipping out my silver linings and highlight good sounding half truths and let you assume it's all good cuz that's what you want routine, lol.
Ah, life with chronic invisible illness...
The Fog has been kicking my butt this weekend. I couldn't seem to figure out why, what was different, it had been so much better for awhile there. Was thinking maybe the antiviral. Or maybe cuz I stopped taking some digestive enzymes I ran out of?
Then I realized, I took some Gabapentin for my cramps last week for a couple of days. Nothing else was touching them, even my normally low blood pressure was high (I'd never seen it high!) so I decided to try some Neurontin, cuz I was getting desperate, and VOILA! From one moment to the next, the nagging pain was just GONE. It was such an amazing moment. I'm not sure I even realized how bad it was until it was gone, and then suddenly I could breathe normally again and relax, it was like a weight had been lifted. Now I'm pretty positive it's that whole central nervous system pain sensitization deal, there was no reason for that much pain. My body's just blowing it outta proportion firing away w/the substance P or however that works.
But yeah, Gabapentin does a NUMBER on my brain function. I swear, today it was like I'd lost like 40 IQ points or something. I spent an hour trying to keep straight how many presents I needed for who, and they were all the same thing, only like 5 of them, just different colors! And as for making decisions? AHHHHH!!!!!!!
Oh, that reminds me of something I've been meaning to write about: The prevalence of Endometriosis in women with CFS & FM. I've seen figures as high as 50% of all women with Endo having FM or CFS as well. Interesting, huh? Even more interesting, my doctor, who believes a virus is at the root of CFS, claims that the viruses attack the male and female sex organs...
He asked me if I was sure I had Endo, I told him that's what they told me when they did the surgery to extract it...he went in and read the surgery report to me, and lo and behold...the wording the surgeon used seemed to intentionally avoid positively confirming that what she'd found was definitely Endometriosis! I thought that was pretty trippy.
Here's a related article:
http://news.bio-medicine.org/biology-news-2/US-researchers-find-endometriosis-associated-with-wide-range-of-diseases-6660-1/
Next time, I'll be blogging about my lust for electronic PT Type gadgets...I totally wasted some time, with feet killing me and exhausted, lusting over a vibrating neck heating pad (shoulders/neck KILLING me when I'm on here lately) and massaging slippers...Ah, to dream, perchance...
I had an unexpected little windfall, and got to go do a little Christmas shopping for those who are nearest and dearest. That made my weekend. It probably sounds a bit trite, but I really don't even mind that much if I don't get anything, it's the giving I love.
It seems I'm also going to get to do the Christmas Eve thing after all. Should be nice, I miss those peeps. Though I do have a bit of anxiety over the whole inevitable what have you been up to routine. Hmm. Well, nothing much...just being sick, losing my apartment cuz I can't work enough to make a living, getting sicker, having to move to another county with my Dad in a Senior Community, away from my newly constructed life, and then getting even sicker...Yeah, that one's definitely TMI.
The other strategy is to go with as much vaguness as possible, and/or whipping out my silver linings and highlight good sounding half truths and let you assume it's all good cuz that's what you want routine, lol.
Ah, life with chronic invisible illness...
The Fog has been kicking my butt this weekend. I couldn't seem to figure out why, what was different, it had been so much better for awhile there. Was thinking maybe the antiviral. Or maybe cuz I stopped taking some digestive enzymes I ran out of?
Then I realized, I took some Gabapentin for my cramps last week for a couple of days. Nothing else was touching them, even my normally low blood pressure was high (I'd never seen it high!) so I decided to try some Neurontin, cuz I was getting desperate, and VOILA! From one moment to the next, the nagging pain was just GONE. It was such an amazing moment. I'm not sure I even realized how bad it was until it was gone, and then suddenly I could breathe normally again and relax, it was like a weight had been lifted. Now I'm pretty positive it's that whole central nervous system pain sensitization deal, there was no reason for that much pain. My body's just blowing it outta proportion firing away w/the substance P or however that works.
But yeah, Gabapentin does a NUMBER on my brain function. I swear, today it was like I'd lost like 40 IQ points or something. I spent an hour trying to keep straight how many presents I needed for who, and they were all the same thing, only like 5 of them, just different colors! And as for making decisions? AHHHHH!!!!!!!
Oh, that reminds me of something I've been meaning to write about: The prevalence of Endometriosis in women with CFS & FM. I've seen figures as high as 50% of all women with Endo having FM or CFS as well. Interesting, huh? Even more interesting, my doctor, who believes a virus is at the root of CFS, claims that the viruses attack the male and female sex organs...
He asked me if I was sure I had Endo, I told him that's what they told me when they did the surgery to extract it...he went in and read the surgery report to me, and lo and behold...the wording the surgeon used seemed to intentionally avoid positively confirming that what she'd found was definitely Endometriosis! I thought that was pretty trippy.
Here's a related article:
http://news.bio-medicine.org/biology-news-2/US-researchers-find-endometriosis-associated-with-wide-range-of-diseases-6660-1/
Next time, I'll be blogging about my lust for electronic PT Type gadgets...I totally wasted some time, with feet killing me and exhausted, lusting over a vibrating neck heating pad (shoulders/neck KILLING me when I'm on here lately) and massaging slippers...Ah, to dream, perchance...
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