My New Favorite Site, & New Drug Research

I found this site when googling for a quick description of M.E. for my mileage registry, and I have to say, i was really impressed. I think it is my favorite new M.E. site:
Name-US.org : The National Alliance for Myalgic Encephalomyelitis

It describes Myaglic Encephalomyelitis in terms that more accurately reflect the impact and severity of the disease, including key quotes by respected experts such as:

"...now there’s proof that inflammation occurs in the brain and there’s evidence that patients with this illness experience a level of disability that’s equal to  that of patients with late-stage AIDS, patients undergoing chemotherapy, or  patients with multiple sclerosis."

-Dr. Nancy Klimas-

 and:

"Myalgic Encephalomyelitis (M.E.) is a neuroimmune disease with serious immune and cardiovascular abnormalities with resulting serious CNS (central nervous system) consequences due to brain injury.  The disease snatches the vital life out of patients on the level of diseases like MS, AIDS, mitochondrial diseases, and cancer.  The pain, cognitive impairment and exhaustion are often literally unspeakable.  Most times M.E. strikes relatively quickly (within hours, days, weeks).  Once active and productive children and adults are robbed of vitality, with disability ranging from completely bedridden to somewhat functional.  Variable disability usually progresses to premature death."

Now, that last sentence may sound like an exaggeration, but I have read/heard that from many doctors; plus, it's worth looking at the list of related illnesses on the left side of this page, and my mentioning that that is only a partial list of the health problems I have developed in just the last few years...sometimes I personally feel like I am physically coming undone, and I may just scream if I am referred to another specialist and prescribed one more pill or treatment.

Anyhow, I commend the authors of that site and am very grateful for the thorough job they did! I'm going to go update my links!

Another thing I found that was interesting, was a link to a study being done for a drug that would treat the autoimmune-type aspects of the disease, here that is: http://www.meassociation.org.uk/?p=8459

 (It's an existing drug called Rituximab that treats diseases such as Cancer, Leukemia, Multiple Sclerosis, and Lupus.)