Cool sites I found about pain & what to do. I think sometimes, when we have Fibro, and the magic pills have failed us or are unavailable, I think we forget that there are other things to try that help, as outlined here:
http://www.backandbodycare.com/home/neck/neck.htm
Another one on my other weak spot, arms/wrists:
http://www.backandbodycare.com/home/wrist/wrist.htm#TENDONITIS
Good stuff, especially the exercises, some of which are stuff that they had me do at Physical Therapy, so I KNOW they help.
Saturday, April 30, 2011
Friday, April 29, 2011
Vote Now to Get a Chunk of the $5M Chase Community Giving for WPI & CFIDS Assoc.
Please do this, if we get up there, the money will go to help us! (PWCs)
Vote Now to Get a Chunk of the $5M Chase Community Giving for WPI & CFIDS Assoc.
Vote Now to Get a Chunk of the $5M Chase Community Giving for WPI & CFIDS Assoc.
Friday, April 22, 2011
Just another day...
Well. Isn't it funny, how when you WANT to sleep in, and CAN, you end up waking up early? I was stubborn, went back to sleep after a couple of hours, because I actually did feel really sleepy. And then when I woke up again, it was awful. I felt like I couldn't move, and it took me awhile to realize that it wasn't that I couldn't move, it was that it hurt to move.
My morning stiffness had gotten better for quite awhile, but lately it's back and with a vengeance. If I'm lucky it's limited to my fingers feeling like someone turned them into overstuffed sausages, but I've occasionally again been greeted by the feeling when I get up that my feet have been smashed to bits and may not hold me long enough to get to...wherever it is I'm headed! But today, it was every bit of me, from the fingers, to the point where my hips and spine meet, my knees, elbows, all felt like I was about 120 years old. I'm talking excruciating pain to move, like a rusted tin woman, which is why before I was fully conscious, since my mind couldn't register more than move=not a good idea, I thought I just couldn't move, but it was really some primitive instinct telling me I probably didn't want to, lol.
Fortunatley, once aware of this, I could move more slowly and carefully, and once the getting up was accomplished, I was okay, except for the sausage fingers, which lasted quite awhile longer. (Again, I think this was the case, I feel like I'm forgetting something else that hurt. See, this is why it's so hard to tell doctors just how bad I feel. In order to stay sane I happily forget any pain that isn't either excruciating, very consistent, or chronic for years.)
I don't know exactly what it is that's causing this to come back. That I quite taking my Inflatrol supplement (Ginger, Turmeric, Quercetin, Enzymes) because I ran out, or not taking Fish Oil anymore for a few months, or stopping the Immune Support supplement that was obviously helping my immune system function better. But anyhow. I still consider it a pretty darn good day. Not a ton of fatigue, after the sleepiness and proceeding nap. Not a ton of pain (though my wrists are nagging a bit at me while I type, that's almost not worthy of mention) feeling ok... Today the problem is mostly spiritual and mental.
Spiritual, because I spent most of the day feeling stifled, stuck inside, something I've been struggling with that I can't decide if to name depression, anxiety, uncenteredness, or just overwhelming isolation and stir-craziness. (Because certainly, being occupied and interacting with people makes it go away.)
Unfortunately, that part is mostly out of my control, and the mental, or rather cognitive part seems to be making getting occupied a problem, I think...I can't decide if my restless spirit won't let me focus, or if I'm restless because I can't focus. So frustrating, wanting to get something productive done, but being thwarted by either one. I'm leaning further towards my brain being the issue, because I've been having SUCH a hard time concentrating. Some work that should have taken me 3 hours or so took me more than double, that's how bad it was. Lots of walking around forgetting what I was doing, starting something new, forgetting that, remember two things ago, forget current, aahhh, just maddening. But the topper, was definitely when I went to meet a friend, knew that I'd opened the ravioli I was planning on having for dinner, but forgot about the water on the stove that I left ON, then proceeded to decide to have dinner out instead. I came home to the sound of a smoke alarm, then realized it was at MY home, not the neighbors, walked into a smokey, beeping condo which I almost burned down via Teflon pot. How's that for a good one? Oh well, I'd wanted to throw that thing out anyhow. Teflon is evil. If you don't believe the cancer reports about it, well here you have it, proof that it IS in fact evil: it tried to burn down my condo. ;)
My morning stiffness had gotten better for quite awhile, but lately it's back and with a vengeance. If I'm lucky it's limited to my fingers feeling like someone turned them into overstuffed sausages, but I've occasionally again been greeted by the feeling when I get up that my feet have been smashed to bits and may not hold me long enough to get to...wherever it is I'm headed! But today, it was every bit of me, from the fingers, to the point where my hips and spine meet, my knees, elbows, all felt like I was about 120 years old. I'm talking excruciating pain to move, like a rusted tin woman, which is why before I was fully conscious, since my mind couldn't register more than move=not a good idea, I thought I just couldn't move, but it was really some primitive instinct telling me I probably didn't want to, lol.
Fortunatley, once aware of this, I could move more slowly and carefully, and once the getting up was accomplished, I was okay, except for the sausage fingers, which lasted quite awhile longer. (Again, I think this was the case, I feel like I'm forgetting something else that hurt. See, this is why it's so hard to tell doctors just how bad I feel. In order to stay sane I happily forget any pain that isn't either excruciating, very consistent, or chronic for years.)
I don't know exactly what it is that's causing this to come back. That I quite taking my Inflatrol supplement (Ginger, Turmeric, Quercetin, Enzymes) because I ran out, or not taking Fish Oil anymore for a few months, or stopping the Immune Support supplement that was obviously helping my immune system function better. But anyhow. I still consider it a pretty darn good day. Not a ton of fatigue, after the sleepiness and proceeding nap. Not a ton of pain (though my wrists are nagging a bit at me while I type, that's almost not worthy of mention) feeling ok... Today the problem is mostly spiritual and mental.
Spiritual, because I spent most of the day feeling stifled, stuck inside, something I've been struggling with that I can't decide if to name depression, anxiety, uncenteredness, or just overwhelming isolation and stir-craziness. (Because certainly, being occupied and interacting with people makes it go away.)
Unfortunately, that part is mostly out of my control, and the mental, or rather cognitive part seems to be making getting occupied a problem, I think...I can't decide if my restless spirit won't let me focus, or if I'm restless because I can't focus. So frustrating, wanting to get something productive done, but being thwarted by either one. I'm leaning further towards my brain being the issue, because I've been having SUCH a hard time concentrating. Some work that should have taken me 3 hours or so took me more than double, that's how bad it was. Lots of walking around forgetting what I was doing, starting something new, forgetting that, remember two things ago, forget current, aahhh, just maddening. But the topper, was definitely when I went to meet a friend, knew that I'd opened the ravioli I was planning on having for dinner, but forgot about the water on the stove that I left ON, then proceeded to decide to have dinner out instead. I came home to the sound of a smoke alarm, then realized it was at MY home, not the neighbors, walked into a smokey, beeping condo which I almost burned down via Teflon pot. How's that for a good one? Oh well, I'd wanted to throw that thing out anyhow. Teflon is evil. If you don't believe the cancer reports about it, well here you have it, proof that it IS in fact evil: it tried to burn down my condo. ;)
Saturday, April 16, 2011
New Study Confirms Cognitive Dysfunction in CFS
Cognitive deficits in patients with chronic fatigue syndrome compared to those with major depressive disorder and healthy controls
TO summarize:
Results
Patients with CFS had slower phasic alertness, and also had impaired working, visual and verbal episodic memory compared to controls. They were, however, no more sensitive than the other groups to suggestibility or to fatigue induced during the cognitive session. Cognitive impairments in MDD patients were strongly associated with depression and subjective fatigue; in patients with CFS, there was a weaker correlation between cognition and depression (and no correlation with fatigue).
Conclusions
This study confirms the presence of an objective impairment in attention and memory in patients with CFS but with good mobilization of effort and without exaggerated suggestibility.
TO summarize:
Results
Patients with CFS had slower phasic alertness, and also had impaired working, visual and verbal episodic memory compared to controls. They were, however, no more sensitive than the other groups to suggestibility or to fatigue induced during the cognitive session. Cognitive impairments in MDD patients were strongly associated with depression and subjective fatigue; in patients with CFS, there was a weaker correlation between cognition and depression (and no correlation with fatigue).
Conclusions
This study confirms the presence of an objective impairment in attention and memory in patients with CFS but with good mobilization of effort and without exaggerated suggestibility.
Wednesday, April 13, 2011
Myers Cocktail
Another thing I want to try when finances allow.
http://www.endfatigue.com/health_articles_f-n/IV-myers_cocktail.html
My fears of waking up back in that place were unfounded, thank goodness. I think it was hormones. (Hate those darn things!) Or maybe it was the sage! lol.
http://www.endfatigue.com/health_articles_f-n/IV-myers_cocktail.html
My fears of waking up back in that place were unfounded, thank goodness. I think it was hormones. (Hate those darn things!) Or maybe it was the sage! lol.
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