A Journal About Living One Day at a Time with M.E. & Related Chronic Ilnesses: Random Thoughts, Research/Theories/Treatment News, Book/Film/Product Reviews, Tools, & Tips
Saturday, December 6, 2008
New Issue of Fibromyalgia Aware Magazine out
from the FMAware.org Site:
The National Fibromyalgia Association has released the newest issue of Fibromyalgia AWARE, the first and only consumer magazine dedicated to the disorder. The issue (Winter 2008 Vol. 18) includes a special section on fibro-friendly exercises.
Featured stories in Vol. 18 include:
* Effective Skills to Relax the Body
* Guidelines for Stretching
* Gentle Body Movements
* Growth Hormones & FM
* Lyme Disease and FM
* Finding a Support Group that’s Right for You
* Research Explores Causes of FM
* Dealing with FM-Related Suicide Thoughts
* Choosing the Right Shoe
* And more
See full text here: http://www.fmaware.org/site/News2?page=NewsArticle&id=8073
Wednesday, December 3, 2008
New Research - alpha1-Antitrypsin and Fibromyalgia
A little complicated to read, especially w/Fog, but some of the key interesting points are that they think there's a genetic disorder causing problems with this protein; that they've treated people with this protein; and that they've found a little fibrous nodules in the muscle, which I know many of us have to different degrees.
Summary:
Alpha-1 Antitrypsin Deficiency
Friday, September 19, 2008
FMOnline vol. 8, no. 9
A recent study published in the Journal of Musculoskeletal Pain looked at deficiency in the protein alpha-1 antitrypsin in people with fibromyalgia in 10 countries around the world. Severe deficiency was found in all 10 countries, with very high frequencies in Denmark and Sweden. Patients from the United States showed this deficiency at intermediate frequencies: one in 11 people, or 478,681 people.
The lead author on this study is Ignacio Blanco, MD, of the Department of Internal Medicine at the Hospital Valle del Nalón in Langreo, Spain. Dr. Blanco wrote a piece on alpha-1 antitrypsin and fibromyalgia for vol. 16 of Fibromyalgia AWARE.
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This article was originally published in FMOnline. This free online newsletter is only available to registered members. Click here to register!
Here is the full article, from the Fibromyalgia Aware Magazine May-July 2008 issue.
http://www.fmaware.org/site/DocServer/ALPHA1-AT.pdf?docID=1261
and a Google Books link to the research as well:
New Research on Fibromyalgia
I knew I wanted to visit Spain!