So, I heard the other night on E! about this guy, Greg Page who had to quit the children's band (I have lots of cousins with kids, lol.) due to POTS, so went to read up about him, and found these two links I hadn't really seen yet! I especially liked the one for young people, and it was cool, because I'd been thinking I had to do SOME kind of exercise, spending wayyy too much time in bed, and gaining way too much weight & getting too weak. Then I checked that site out, & they had an article & a link to strengthening exercises, so I thought that was cool.
Dysautonomia Youth Network of America (DYNA)
National Dysautonomia Research Foundation
Oh, I believe the Wiggle's guy, Greg Page, founded one of them, and also very cool, he's mostly recovered and back to work!
http://www.gregpage.com
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